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P356. Irish IBD patients' perception of colorectal cancer screening: Lessons learnt from an 18 years follow up study

M.N. Shuhaibar1,2, C. O'Morain1,2

1Adelaide and Meath Hospital incorporating the National Children Hospital, Dublin 24, Ireland; 2Trinity College Dublin, Dublin, Ireland

Aims: Inflammatory bowel disease is a chronic condition, with its two main forms Ulcerative colitis (UC) and Crohn's disease (CD) that predominantly affects young adults and patients in their fifth decade. During disease course patients' interest to know about IBD potential complications varies, depending on many factors, some related to the individual, knowledge level, disease and its activity, health care system and providers, family history and the overall general perception.

In this part of the study we aimed to assess long term IBD patients' perception for colorectal cancer (CRC) screening, particularly in view of their prolonged disease experience, and in the recent media campaign to promote a national CRC screening program in Ireland.

Materials and Methods: Patients in our cohort had been diagnosed with IBD since the early 1990s. They were attending specialists with IBD interest in six tertiary hospitals in the greater Dublin area. All of these patients had colonoscopies at diagnosis and over 51% had a mean of 4 colonoscopies over the 18 years (range 3–8).

As part of the questionnaire to evaluate the prospective Irish IBD population cohort, patients' knowledge was assessed, using a validated international questionnaire (CCKNOW), with the focus on CRC screening in UC patients.

Results: A total of 107 IBD patients' questionnaires were completed after patient interviews over a period of 7 months and were analysed. 68/107 (63.55%) patients didn't know the answer regarding CRC screening. Of those 27 had CD (17 females and 10 males) and 41 were diagnosed with UC (19 females and 22 males). These patients had a mean IBD diagnosis of 18.1 years.

There were 15 (14%) patients who thought that screening should be offered to all those diagnosed before 50 years of age. 9 of them had UC (5M, 4F) and 6 had CD (2M, 4F). Moreover, only 10 (9.4%) patients thought CRC screening should be offered for those with the diagnosis for the past 8–10 years. Of those, 7 had UC and 3 CD. Whereas, 11/107 patients thought screening should be for those with rectal involvement. Further more, 18% of participating patients in the study had screening colonoscopy following questionnaire completion and discussion.

Conclusion: This study showed a gap in IBD patients' knowledge for CRC screening in their second decade of diagnosis and despite the fact that >51% of them had 4 colonoscopies over the years. UC patients knowledge deficit is greater than those with CD.

Educating IBD patients shoud be a continuous process and patient perception should also be taken in consideration.