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P156. Development of quality standards for the management of inflammatory bowel disease by nurses: Perspectives of professionals and patients


P. Hernández-Sampelayo1, A. Torrejón Herrera2, L. Marín3, L. Oltra4, M. Seoane5, V. García-Sánchez6, F. Casellas2, N. Alfaro7, P. Lázaro7, M.I. Vera8

1Gregorio Marañón Universitary Hospital, Madrid, Spain; 2Vall d'Hebron UniversitaryHospital-Ciberehd, Barcelona, Spain; 3Germans Trias i Pujol Universitary Hospital, Badalona-Barcelona, Spain; 4Manises Hospital, Manises-Valencia, Spain; 5Santiago de Compostela Universitary Hospital (CHUS), Santiago de Compostela, Spain; 6Reina Sofía Universitary Hospital, Córdoba, Spain; 7Advanced Techniques in Health Services Research (TAISS), Madrid, Spain; 8Puerta del Hierro Universitary Hospital, Madrid, Spain



Background: The nursing role in the management of inflammatory bowel disease (IBD) is very important, however, little is known about their quality standards.

Objective: To develop quality standards for nursing care, with inputs from the scientific evidence and opinion of health professionals (nurses, gastroenterologists and surgeons) and patients.

Methods: After a literature search on the management of IBD by nurses, two questionnaires were developed: Questionnaire A, for professionals composed by 178 items as potential indicators of quality of care, and questionnaire B, for patients (123 items). Common for both questionnaires were 117 items.

With the questionnaires, a 2 two-round Delphi was conducted for each collective: Delphi A addressed to 27 IBD health professionals (12 nurses, 12 gastroenterologists, 3 surgeons) and Delphi B to 12 IBD patients.

The items were assessed by two kinds of scale: scale of 1 to 9 (1 not important, 9 very important) and continuous (e.g., number of visits per year).

Results: Patients consider necessary twice more visits a year that health professionals (6 vs. 3 visits), demand faster care (6 vs. 10 waiting days) and greater availability of nursing days for consultation (4 vs. 3 days/week). Patients and health professionals propose to devote at least half an hour on the first visit and after an ostomy, and at least 15 minutes on subsequent visits. Both consider as the most relevant resource the electronic medical records, telephone help hotline and patient registries. Regarding the nurses competences, patients believe that nurses should manage the telephone help and the supervision of ostomy problems, while health professionals give priority to medication management. Patients give more importance to the information that nurses about health care, options and conditions of treatment, diagnostic tests performed, disease status, disease evolution, and about the forthcoming diagnostic and therapeutic procedures. Regarding nursing training, health professionals prioritize clinical aspects, and patients also include communication skills.

Conclusions: The relevance of quality standards on the management of IBD by nurses differs between health professionals and patients. Our findings may help to improve the quality of care, patient-centered care, and ultimately, the patients' outcomes with a multidisciplinary approach.