P584. A study evaluating clinicians' attitudes and preferences for a web-based IBD patient portal designed to facilitate self-management
C. Calvert1, S. Lal2, C. Stansfield2, J. McLaughlin1, A. Robinson2, 1Manchester University, School of Translational Medicine, Manchester, United Kingdom, 2Salford Royal Foundation Trust, Gastroenterology, Salford, United Kingdom
Providing patients online access to their IBD record offers new opportunities to empower patients and improve health outcomes. Studies have shown patients want greater access to information and greater involvement in their care. We are currently developing an IBD patient portal to facilitate self-management. As part of the development process, clinicians' attitudes and preferences were assessed.
An open-ended questionnaire was devised to assess the perceived advantages, disadvantages and pre-conditions of providing IBD patients' online access to their record. Preferences of the proposed components were elicited using a 5-point Likert scale questionnaire. Gastroenterologists attending a regional meeting were asked to complete the survey. Attitudes were assessed using framework analysis. Responses were coded into categories. Preferences were analysed by quantifying scores for each component and calculating the percentages of clinicians' who agreed, were neutral or disagreed.
38% (16/42) of attendees completed the questionnaire. The following themes emerged.
Four inter-related but distinct advantages were identified.
- Increased patient participation/ownership.
- Greater knowledge and understanding.
- Improved patient-provider communication.
- Enhanced safety.
Potential concerns were categorised into three themes.
- Interpretation of the data.
- Extra workload.
- Inequalities of service.
Pre-conditions were organizational and included informed consent, opt-in only, automation of data transfer, security and restriction of selected data.
100% of the respondents agreed a summary of their history and medicines should be included. 94% agreed that a symptom-monitoring tool would be useful. 88% and 63% agreed patients should have access to their letters and bloods. The biggest concern identified would be providing imaging and endoscopy reports with only 31% agreeing, 44% neutral and 25% disagreeing. Many felt reports would be misinterpreted and cause anxiety. An online forum and email support divided opinion, with 56% agreeing and 44% neutral or disagreeing to these services. Concerns were raised with moderating email contact and content of the forum.
Previous research has shown many e-health technologies fail in routine practice due to lack of stakeholder involvement. Clinicians' views are critical to successfully implement a web-based service designed to improve the delivery of care. These views have been incorporated into the design of an IBD portal system.