DOP090. Results from a feasibility study with the telemedicine tool myIBDcoach in the Netherlands
J. Degens1, M. Romberg-Camps2, M. Cilissen3, H. Tomlow3, T. Markus4, A. Masclee3, D. Jonkers3, A. van der Meulen-de Jong5, M. Pierik6, 1MUMC, division Gastroenterology-Hepatology, Maastricht, Netherlands, 2ORBIS Medical Centre, Gastroenterology and Hepatology, Sittard, Netherlands, 3MUMC, Gastroenterology, Maastricht, Netherlands, 4CCUVN, CCUVN, Hoofddorp, Netherlands, 5Leiden University Medical Center, Gastroenterology and Hepatology, Leiden, Netherlands, 6Maastricht University Medical Centre, Internal Medicine - Division of Gastroenterology and Hepatology, Maastricht, Netherlands
Inflammatory bowel diseases (IBD) have important socio-economic implications. Non of the available drugs is effective for all patients and many have severe side effects. To prevent complications IBD should be monitored carefully and treated in a multidisciplinary team. However many disease aspects are not followed systematically. In the Netherlands there is a shortage of gastroenterologist where the incidence of IBD is rising. Furthermore the government demands registration of efficacy endpoints for expensive drugs. For al these reasons healthcare reorganization is necessary. Direct involvement of health care workers, patient empowerment and integrated care improve the outcome of chronic diseases. Therefore we developed a telemedicine tool for all IBD patients in collaboration with the Dutch IBD patient's organization (CCUVN). “myIBDcoach” contains E-learning modules, monitors disease activity, disability, quality of life, compliance, infections, side effects, stress and malnutrition on fixed time points with validated questionnaires, allows the patient to communicate with health care workers and gives feedback to the back office and the patient. The aim of this feasibility study was to measure compliance with the system and satisfaction of health care workers and patients.
Thirty consecutive IBD patients visiting the outpatient clinic in 3 hospitals (12 MUMC, 7 OrbisMC, 11 LUMC) were invited to participate. Patients received a username and password and used MyIBDCoach via internet from November 2012 until the end of February 2013. IBD-Nurses, gastroenterologist and patients received a 21 item questionaire before and after 3 months use.
Patients judged the system with a mean score of 7.8 out of 10 and 93% would advise others to use the system. All the patients completed the monthly questionnaires. Twelve out of 30 patients contacted their health care workers via the system during the test period. Eighty-three per cent of the patients found myIBDcoach to facilitate communication with the hospital. Ninety per cent of the patients completed at least 1 E-learning module. All the participants (patients, MD's, IBD-nurses) thought that the design and user friendliness of myIBDcoach was excellent. Only one patient thought the system was time consuming.
Since healthcare reorganization for IBD is necessary in the Netherlands we developed myIBDcoach. This feasibility study showed a high satisfaction and compliance of IBD-patients and health care workers with this telemedicine tool. Therfore we started a large multicentre randomized trial investigating whether myIBDcoach decreases hospital visits and increases medication compliance and the quality of care for IBD patients without an increase in complications.