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P532 Quality of Care in Family Planning and Pregnancy - an Online Survey among 475 Female Patients with Inflammatory Bowel Disease

S. Brunne, J. Walldorf*

Martin Luther University Halle-Wittenberg, Department for Internal Medicine I, Halle, Germany

Background

Inflammatory Bowel Disease (IBD) often affects young patients. Especially for young patients, family planning and pregnancy are highly relevant matters. Accordingly, when discussing pregnancy and family planning, questions regarding specific risks for mother, pregnancy and children are very important. It was the subject of this survey, to evaluate the satisfaction of IBD patients with the doctors' advice on this topic.

Methods

A questionnaire on the patients' satisfaction with the quality of care specifically regarding family planning and pregnancy was made available through the an online survey system. 475 female patients from Germany, Austria and Switzerland were recruited using communication channels of patient self help organisations (DCCV, ÖMCCV, SMCCV). The results are expressed as mean ± SD (Likert scale from 1-10 with "10" corresponding to "very satisfied"/"agree very much" and "1" to "very dissatisfied/disagree very much").

Results

197 patients (46%) reported, that IBD had a significant impact on their family planning (Likert scale>7). In general, the patients were satisfied with their physicians' counselling (7.4 ± 2.2). Also, in terms of counselling regarding drug therapy in general, the patients were mostly satisfied (6.6 ± 2.5, p <0.001 vs. treatment in general). In contrast, the patients were significantly less satisfied with the counselling regarding the desire for children and pregnancy (5.2 ± 3.1, p<0.0001) and regarding medication during pregnancy (5.5 ± 3.1, p<0.0001). Patients without children were even more dissatisfied with the counselling regarding family planning (4.8 ± 2.9, p=0.001 vs. patients with children). The package information leaflets were often considered unsettling (6.2 ± 2.9).

Conclusion

The results underline the importance of careful information on chances and risks regarding pregnancy, the health of the children and the disease activity. The relatively high satisfaction with medical care in general shows that the patients do not experience a general communication deficit in their physician-patient relationship. Still, the results underline the need to address specific problems regarding family planning and pregnancy. An intensified focus on these specific problems might improve the quality of care in patients with IBD. Although a causal assessment of the deficits in the quality of care is difficult using the presented data, possible approaches to address these specific needs might include clarifications in package information leaflets and an improved training of physicians with regard to these aspects of IBD.