P690 Current views and concerns of European UC patients based on an online survey
R. Hofmann*1, X. Guillaume2
1Tillotts Pharma, Medical Affairs, Rheinfelden, Switzerland, 2Kantar Health , Research, Montrouge, France
Ulcerative colitis (UC) affects many aspects of a patient's life. UC substantially impairs patients' health-related quality of life which includes both the physical symptoms of UC and possibly also major psychosocial and emotional consequences (1). The consequences are dependent on the individual coping capabilities and personality. Detailed data has been collected in the past. Like in other areas insights, attitudes and concerns are subject to dynamic, continuous change. As an individual long-term prognosis is not possible, the population derived data (in conjunction with socio-demographic variables like gender, level of education, socioeconomic status, and age) are guiding the overall treatment and communication strategy of healthcare providers (HCP).
Methods: Data Source: The study was conducted among a sample of 372 UC patients (204 in United Kingdom, 77 in Spain, 21 in Denmark, 34 in Finland, 28 in Sweden and 8 in Norway) from a qualified panel.
Period of data collection: The data collection took place from the 11th of December 2013 to the 10th of January 2014.
Implementation: The individuals from the sample received a link, via email, to an online questionnaire on a secure platform. The questionnaire asked about their UC history, their attitudes and behaviors towards UC and its management and their level of adherence to treatment. Socio-demographic characteristics (gender, age, geographic location) and medical history were also collected.
Out of 20 pre-defined descriptors, participants ranked 5 to describe their feelings. The patients ranked as their No. 1 feeling: Uncomfortable (18%); Fed up (13%); Bothered (8%); Powerless (8%); Depressed (7%).
The 5 most common feelings were: Uncomfortable (43%); Fed up (13%); Stressed (33%); Exhausted (28%); Frustrated (28%).
The 3 least common feelings were: Defeated (9%); Despaired (8%); Rejected (4%).
A majority of the UC patients fear the following: UC leads to serious complications (74%), is painful (67%) and is recurrent (66%).
More than a quarter of the patients are convinced that neither relatives/friends (31%) nor their physician (29%) take their disease seriously. 8% have low confidence in the healthcare professionals treating them and 10% are unsatisfied with their medical care.
Despite the clear burden of disease most patients cope quite well. There is a certain lack of trust in the diagnostic and treatment capabilities of their healthcare providers, expressed by almost 10% of the patients. The likely reasons are frustration about the course of disease and the futility of previous medication. Patients' belief "that their disease is not taken seriously" by physicians needs further research. Some concerns and believes should be addressed by an education program.
 M. S. Sajadinejad, K. Asgari, H. Molavi, M. Kalantari, P. Adibi, (2012), Psychological Issues in Inflammatory Bowel Disease: An Overview