N015 Educational themed evenings: do they make a difference for patients and relatives living with inflammatory bowel disease
E. Kjær Mikkelsen*, A. Bindesboell
Regionshospitalet Herning, Medical Departement, Gastroenterology, Herning, Denmark
At the outpatient clinic for gastroenterology we have held themed evenings since 2013 for patients with inflammatory bowel diseases (IBD) and connected to the clinic and their relatives. The purpose of the evenings is to increase the knowledge for patients and relatives on the diseases, treatment options, and to establish the best possible cooperation with the outpatient clinic to improve health-efficacy regarding life with IBD. The evenings are held twice a year and consist of 1 evening on ulcerative colitis, 1 on Crohn’s disease, and 1 for both groups on social and economic issues, nutrition, and the patient’s organisation. The evenings are planned and performed by nurses from the outpatient clinic, together with a social worker and representatives from the patient’s organisation. The aim of the study is to find out to which degree the participants experience the evenings as useful in life with IBD in a longer term. This will also indicate whether the evenings fulfil their purpose and are an economically relevant way to spend the resources required.
In the autumn of 2014, we sent out a questionnaire to everyone who at that time had participated in the evenings. At the time, their participation went back 6 to 18 months. The questionnaire was divided into 5 subjects, covering the contents of the evenings. The subjects were (1) knowledge about the diseases, (2) coping with the diseases in everyday life, (3) cooperation with the outpatient clinic, (4) knowledge about social and financial support, and (5) awareness on sufficient nutrition. For each subject they were asked to mark to which degree they felt their competence and health-efficacy had been improved by attending the themed evenings. The scale for answering went from 1 to 5, with 5 being the highest. The answers were anonymous and were handled by people outside the outpatient clinic.
The results show that the average score on each subject is between 3.41 and 4.00 on the scale from 1 to 5. In general, the score is higher for patients compared with relatives, and women report a bigger outcome compared with men. Related to the age of the participants, there is no significant difference. Related to nutrition, the result is different, as the outcome was significantly higher for women between the ages of 30 to 59 and indifferent to whether they were patients or relatives.
The result shows that health-efficacy of both patients and relatives is increased significantly by taking part in the themed evenings. This is the case not only in the short term after participation but also in the longer term. This supports the fact that patient education is a good and economically appropriate initiative to increase health-efficacy for both patients and relatives in regard to life with IBD.