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N017 Self-care of inflammatory bowel disease may be associated with better well-being

U. Lovén Wickman*1, B. Riegel2, P. Yngman Uhlin3, H. Hjortswang4, G. Hollman Frisman5

1Linköping University, Department of Primary Health Care in Kalmar County Council of Kalmar, Sweden, Blomstermåla, Sweden, 2University of Pennsylvania, Prof School of Nursing, Philadelphia, United States, 3Linköping University, Research and Development unit in local Health Care, Linköping, Sweden, 4Linköping University, Department of Gastroenterology and Department of Clinical and Experimental Medicine, Linköping, Sweden, 5Linköping University, Department of Medical and Health Sciences, Linköping, Sweden


Patients with inflammatory bowel disease (IBD) have symptoms influencing their life, and they need to manage through self-care. There is limited knowledge of self-care and self-care assessments amongst these patients which is why specific self-care assessment is needed. The aim of this study was to evaluate the self-care inventory amongst patients with IBD in a US sample.


A cross-sectional web-based pilot inventory measuring self-care maintenance, monitoring, management and confidence was performed. The self-care inventory was developed in Sweden during 2014–2015. Adult patients with IBD were recruited through and invited to complete a web-based survey designed by EsMaker NX 3.0 during October to November 2015.


Patients (n = 67) aged 21–80 participated, and there were more women (72%) than men included. A majority (94%) had an education on university level. Self-care in terms of self-care maintenance, monitoring, management, and confidence showed that higher well-being was related to better self-care maintenance, monitoring, and management, p < 0.05.


This pilot study suggests that patients with IBD, regardless of age, gender, and marital status, who practice self-care might have higher well-being.


[1] Lovén WU, Yngman-Uhlin P, Hjortswang H, et al. Self-care amongst patients with inflammatory bowel disease: an interview study. Gastroenterol Nurs 2012;

[2] Riegel B, Jaarsma T, Strömberg A. A middle-range theory of self-care of chronic illness. ANS Adv Nurs Sci, ANS Adv Nurs Sci 2012;35(3):194–204.