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N020 Young and hospitalised: a qualitative study of young patients with inflammatory bowel disease and their experiences during hospitalisation

R. Lindahl*

Region Zealand, Gastroenterology, Køge, Denmark


Over the last 2 decades there has been an increase in inflammatory bowel disease (IBD) in Denmark.1 This increase is especially amongst young people (15–29 years) who therefore are hospitalised to get treatments. Most of these young people have no experience of being sick or hospitalised, and are just trying to grow up like all young people, and then suddenly they have a chronic disease. The purpose of this study was to obtain knowledge of young IBD patients’ experiences during hospitalisation.


The study had a hermeneutical inspired approach and the research design was based on Kvale and Brinkmann’s descriptions of the qualitative interview. The data were collected through 4 semi-structured interviews. For the theoretical analysis, methodology about the 4 existentials themes of Max van Manen, was used.


The study shows 3 overall themes; patient–patient relationship, the time during the hospitalisation, and thoughts for the future.


The young hospitalised patients experienced that the patient–patient relationship during hospitalisation had a positive effect. The time during the hospitalisation felt long and tedious. The waiting that occurred during hospitalisation contributed to a lack of relation to the staff because the time with the staff was limited. It also appeared that during their hospitalisation, the young patients thought about the future and their life with IBD. The findings of this research lead to suggestions about changes in practice and the need for further research in the area.


[1] Nørgård, B.M., Nielsen, J., Fornager, K. et al. (2014), The incidence of ulcerative colitis (1995‐2011) and Crohn’s disease (1995– 2012) - based on nationwide Danish registry data. J Crohns Colitis 2014;8(10)1274–280.