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P416 An online educational portal is effective in improving knowledge regarding reproduction and IBD

K. Wierstra1, K. Smith1, J. Bal2, L. Ambrosio2, K. I. Kroeker2, L. Dieleman2, B. Halloran2, R. N. Fedorak2, K.-A. Berga3, V. W. Huang*4

1University of Alberta, Edmonton, Canada, 2University of Alberta, Gastroenterology, Edmonton, Canada, 3MacEwan University, Edmonton, Canada, 4University of Alberta, Medicine, Edmonton, Canada

Background

Inflammatory bowel disease (IBD) is a chronic disease involving inflammation of the gastrointestinal tract. IBD affects patients through their adolescent and young adult years, what is considered their reproductive years. Many IBD patients have a lack of knowledge regarding their disease and reproduction; this has been associated with ‘voluntary childlessness’ amongst women with IBD. The aim was to develop and test the effectiveness of an online educational portal to improve knowledge regarding reproduction and IBD amongst IBD patients.

Figure 1. Pre-study and post-study CCPKnow scores.

Figure 2. Changes in CCPKnow scores for interactive and basic text groups.

Methods

The University of Alberta IBD group developed an online educational portal covering the topics of IBD and fertility, pregnancy, delivery, and breast feeding. IBD patients (age 18 to 45yrs) were invited to participate in this study through the clinic and advertisements (paper and social media). Participants were randomised into 2 groups: (1) text-only webpages and (2) interactive modules (short videos, slide sets, self-quizzes, FAQ), and then given 2 months to access the online educational portal. Participants completed pre- and post-study Crohn’s and Colitis Pregnancy Knowledge (CCPKnow) questionnaires to assess their pregnancy-related IBD knowledge. Responses were grouped as poor (0 to 7), adequate (8 to 10), good (11 to 13), or very good (14 to 17). Pre- and post-CCPKnow scores were compared using non-parametric tests. Participants were also asked about concerns and ‘voluntary childlessness’ regarding IBD.

Results

As of November 1, 2015, 41 of the 70 registered participants (5 males and 36 females) have completed the study. Knowledge scores improved from pre-study CCPKnow 8.0 (IQR 4.0–12.0) points to post-study 16.0 (14.3–16.0) points (p-value < 0.01). Participants in the interactive group improved their CCPKnow scores by 2.0 more points than the text-only group, 8.0 (IQR 3.5–12.0) points vs 6.0 (IQR 4.0–9.0) points, respectively.

Conclusion

Access to an online educational portal improves knowledge regarding reproduction and IBD. Interactive modules improve knowledge more than text-only webpages do. Further research on the effect of improving knowledge on the women’s concerns and ‘voluntary childlessness’ is in progress.