P547 Effectiveness of patient education in inflammatory bowel disease
A. Berding*1, 2, C. Witte1, B. Kaltz1, R. Weiland2, A. Reusch2, H. Faller2
1German Crohn’s and Colitis Association (DCCV e.V.), Berlin, Germany, 2University of Würzburg, Department of Medical Psychology, Medical Sociology and Rehabilitation Sciences, Würzburg, Germany
Patients with inflammatory bowel disease (IBD) are affected by a wide range of somatic and psychosocial problems and patient education may contribute to their well-being. Nevertheless, a manualised education programme for IBD patients, which includes medical and psychological topics and improves psychosocial outcomes, is unavailable in Germany so far. Thus, we intended to design and evaluate such a programme as a 1.5-day weekend seminar for an outpatient setting.
In total, 181 IBD outpatients participated in a multicentre, prospective, randomised, wait list-controlled study with assessments before, as well as 2 weeks and 3 months after, the intervention. The intervention group (n = 86) was reassessed at 12 months. Disease-related worries and concerns (PS-CEDE), fear of progression (PA-F-KF), coping with anxiety (PA-F), health competencies (heiQ), health-related quality of life (SF-12), perceived disease activity (GIBDI), symptoms of depression and anxiety (PHQ-4), disease-related knowledge, coping, and the participants’ satisfaction with the programme were evaluated.
Further, 2 weeks and 3 months after the course, there were significant medium-to-large effects on disease-related worries and concerns, fear of progression and coping with anxiety, constructive attitudes and approaches, as well as skill and technique acquisition (p = 0.001 or less). Moreover, we found large significant effects on knowledge and coping with IBD (p < 0.001) and medium effects on coping with disease-related negative emotions (2 weeks post-intervention, p = 0.001; at 3 months, p = 0.008). The number of coping strategies used was significantly higher at the 3-month follow-up (p = 0.011). All effects were stable at the 12-month follow-up. Perceived disease activity, health-related quality of life, positive and active engagement in life, as well as symptoms of anxiety and depression, were unaffected. The seminar was rated very favourably by the attendees.
The patient education programme contributes to short-, medium- and long-term improvements in psychological distress, self-management skills, and coping with IBD. Our self-help organisation will therefore continue offering it.