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P566 Are relatives aware of inflammatory bowel disease patients’ worries?

L. Fernández-Salazar*, E. Berroa, B. Antolín, J. M. González

Hospital Clínico Universitario, Gastroenterology, Valladolid, Spain


The rating form of inflammatory bowel disease (IBD) patients concerns (RFIPC) includes 25 items, and it was designed to measure the worries and concerns of IBD patients. Our aim is to clarify the agreement between how much patients worry and how much relatives think patients worry about different aspects.


In total, 83 patients with 1 relative each were interviewed. Each patient and relative were asked to answer the RFIPC. The 25 questions to the patients were formulated as follows: ‘How much are you worried about…?’ The questions to the patient relatives were formulated as follows: ‘How much do you think your relative is worried about…?’ Factor analyses were arranged to compare the responses, and the 25 items were summarised in 5 factors, ‘consequences of the disease’, ‘intimacy and sexuality’, ‘isolation’, ‘medical care quality’, and ‘surgery and hygiene’. Comparison and correlation of scores between patients and relatives were assessed by Wilcoxon test and Pearson test.


Patients were 48 years old (SD 13), 51% females, 54% CD, and 43% UC. Relatives age was 51 (SD13), 65% females, and they were partners 70%, parents 21%, brothers/sisters 5%, and sons/daughters 4%. Scores and correlation between patients and relatives scores were ‘consequences’ 52 (SD24) vs 65 (SD25) p < 0.001; R 0.431, p < 0.001, ‘intimacy and sexuality’ 32 (SD23) vs 39 (SD27) p < 0.033; R 0.385, p < 0.001; ‘isolation’ 32 (SD26) vs 38 (SD32) p 0.135; R 0.413, p < 0.001; ‘medical care quality’ 63 (SD26) vs 69 (SD28) p 0.110, R 0.378, p <0.001; and ‘surgery and hygiene’ 52 (SD29) vs 62 (SD29) p 0.009; R 0.339, p < 0.001.


There is not a strong correlation between how much relatives think patients worry and how much patients really worry. Relatives overestimate the worries of patients about ‘consequences of the disease’, ‘intimacy and sexuality’, and ‘surgery and hygiene’.