N16 The influence of children's inflammatory bowel disease (IBD) on the relationship between parents and their married life
M. Kotkowicz-Szczur*1, J. Kierkuś2, M. Matuszczyk2
1The Children’s Memorial Health Institute, Department of Gastroenterology, Hepatology and Immunology, Warszawa, Poland, 2Children's Memorial Health Institute, 1Department of Gastroenterology, Hepatology, Feeding disorders and Pediatrics, Warszawa, Poland
Paediatric chronic illnesses, especially severe ones, greatly alter not only the quality of life of child, but also its family and especially its parents. The purpose of the study was to investigate whether and how the relationships between parents of children with UC (ulterative colitis) and CD (Crohn’s disease) had been changed since the diagnosis of the disease.
The analysis was based on the results of the questionnaire containing 23 questions addressed to the parents of children with IBD. The questions were generally related to the awareness of the child's illness ,subjective assessment of its exacerbation, access to the different kinds of support, marriage misunderstandings due to illness or its exacerbation and the impact of disease on their free time and marriage life. From September 2017, 350 questionnaires were distributed to parents of children with IBD. Till now the 216 completed questionnaires have been returned and 211 of them were included into the analysis (5 were excluded due to lack of complete data). The Student
46% of respondents (
Based on above results we concluded that the diagnosis of IBD in the child have a significant impact on the relationship between the parents and their married life. Families are forced to change their way of life or resign from work to make the care of their child.