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P494 Regional survey on satisfaction with healthcare in inflammatory bowel disease patients

V. Borzan1,2, V. Orsic Fric*1,2, B. Borzan2

1Clinical Hospital Centre Osijek, Department of Gastroenterology and Hepatology, Osijek, Croatia, 2University J.J. Strossmayer of Osijek, Faculty of Medicine, Osijek, Croatia

Background

Inflammatory bowel diseases (IBD) are chronic and lifelong conditions that can have a major impact on patients’ lives. Due to chronic nature of the disease, patients are in constant interaction with the healthcare system. Therefore, it is of great importance to constantly question patients’ needs and satisfaction to provide better and more patient-oriented care. Aim of this study was to survey IBD patients’ opinion on their overall care.

Methods

We created an anonymous questionnaire and posted it to the web-based IBD patient group that gather patients from our geographical region (Croatia, Bosnia and Hercegovina, and Serbia). Besides general information, such as gender, age and diagnosis, patients were asked about their disease activity, general satisfaction with the healthcare received, access to IBD doctor, their knowledge about the disease and changes they would take to make healthcare system better. We received 387 responses between November 2017 and November 2018, and analysed them by descriptive statistics and chi square test.

Results

A total of 193 patients with Crohn’s disease and 194 patients with ulcerative colitis filled the questionnaire, of which 268 (69.3%) were female. Median age was 35 years (min. 13, max. 70 years). A majority of patients (n = 286, 73.9%) were satisfied with their overall care. According to their opinion, important changes that would improve patient care are: better access to IBD doctor (n = 129, 33.3%), more educational materials (n = 100, 25.8%), more interaction with other IBD patients (n = 62, 16.0%). Twenty-one patient (5.4%) had other suggestions, and 75 patients (19.4%) would not make any change. IBD doctor’s availability was of great importance, as 91.6% of patients (n = 219) that could easily reach to their gastroenterologist were satisfied with healthcare received compared with only 45.3% (n = 67; p < .001) of patients whose doctor was not available. Even among patients whose disease was active, IBD doctor’s availability was considered important, as 83.3% (n = 65) of them were satisfied with healthcare if their doctor was available compared with 25% (n = 16; p < .001) of those whose doctor was not easily reachable.

Nearly half of patients considered to be excellently or well informed (n = 193) about the disease, 36.7% (n = 142) were satisfied with their level of knowledge. Major source of information about the disease was internet, IBD doctor and patient advocacy groups.

Conclusion

Most of the patients think that better access to IBD doctor would improve patient care. Therefore, improving access to the IBD service should be of special interest to us. Our aim should also be a better education of our patients by improving educational materials and promoting patient advocacy groups.