P514 Health Care Transition outcomes in inflammatory bowel disease: an international Delphi study
G. van den Brink1, M. van Gaalen1, L. de Ridder1, J. Escher*1, J. van der Woude2
1Erasmus MC-Sophia Children’s Hospital, Paediatric Gastroenterology, Rotterdam, The Netherlands, 2Erasmus MC, Department of Gastroenterology, Rotterdam, The Netherlands
Transition programs are designed to prepare adolescent inflammatory bowel disease (IBD) patients for transfer to adult care. It is still unclear which outcome parameters define ‘successful transition’. Therefore, this study aimed to identify outcomes important for success of transition in IBD.
A Delphi study in (paediatric) gastroenterologists and IBD-nurses was conducted. In Stage 1, panellists commented on an outcome list. In Stage 2, the refined list was rated from 1–9 (least-very important). In Stage 3, important outcomes (mean score 7–9 without disagreement), were ranked from 1 to 10 (least to most important). Descriptive statistics and Mann–Whitney
A total of 74 international participants participated (52.7% paediatrics). The final item list developed in Stage 1, was tested in Stage 2 where 10 items were found to be important. In Stage 3, a top-10 list was formed. The five most important items were: ability to make decisions regarding IBD (mean score 6.7), independent communication (mean score 6.3), patient satisfied transition process (mean score 5.8) medication adherence (mean score 5.6), medication knowledge (mean score 5.5). Only ‘medication adherence’ was given a higher mean rank by paediatric (6.28) compared with adult (4.38) providers (p = 0.033).
This is the first study identifying outcomes that IBD-healthcare providers deem important factors for successful transition. Self-management skills were considered more important than IBD-specific items. This is a first step to further define success of transition in IBD and subsequently evaluate the efficacy of different transition models.