UR-CARE

The United Registries for Clinical Assessment and Research (UR-CARE) platform is an online international registry capturing IBD patients' records in an easy and comprehensive way. UR-CARE is designed for daily clinical practice and research studies and is available to study groups as well as to individual centres.

Try the Demo Version yourselves:

DEMO VERSION-OPEN ACCESS

NEWS

• It is with great pleasure that we officially welcome David Drobne and Yamile Zabana as the new UR-CARE Advisory Board (Steering Committee) members.

• UR-CARE based manuscript by SING: Biological treatment approach to inflammatory bowel disease is similar in academic and nonacademic centres - prime time for decentralisation of inflammatory bowel disease care?

• UR-CARE Registry Validation: Validation of the 'United Registries for Clinical Assessment and Research' [UR-CARE], a European Online Registry for Clinical Care and Research in Inflammatory Bowel Disease

UR-CARE at ECCO´24
L to R: Fernando Magro, Naila Arebi, Filip Baert, Gerhard Rogler, Britta Siegmund

TAKE A FIRST LOOK AT THE UR-CARE DATABASE:  

OVERVIEW OF THE IBDIM STUDIES USING THE UR-CARE DATABASE   

STUDY: DevEloping Clinical decision support system for Inflammatory Bowel Disease treatment de-escalation (DECIDE).
AIM: Generate data that will help the clinician to implement treatment de-escalation for their patients with Inflammatory Bowel Disease in the routine practice.

STUDY: An international Multi-Interventional Registry study for chronic ileoAnal pouCh Leaks in UC (the MIRACLE- project).
AIM: Determine the functional anastomotic integrity rate 12 months postoperative after implementing multi-interventional program based on best peri-operative clinical care and assess long-term functional anastomotic integrity rates for patients that received current peri-operative care by performing a retrospective cohort study.

More information on how to conduct studies can be found here.

The Governing Structure of UR-CARE 

Filip Baert
Managing Director of IBDIM
Belgium

Gerhard Rogler
UR-CARE Steering Committee Chair
Switzerland

Naila Arebi
United Kingdom

Andre D'Hoore
Belgium

David Drobne
Slovenia

Yamile Zabana
Spain

Find the answers to your UR-CARE questions. 

INTRO VIDEOS & FREQUENTLY ASKED QUESTIONS (FAQs)

Reach out to UR-CARE Team, if you are interested and have any open questions at: This email address is being protected from spambots. You need JavaScript enabled to view it.

This project is facilitated by IBDIM - IBD in Motion GmbH, the Research Unit of ECCO.