ECCO CONFER Cases

COllaborative Network For Exceptionally Rare case reports  

MASTER ECCO CONFER Cases Logo

 

About

Unique and extraordinary clinical cases are generally reported in the form of a single case report or a small series, making it hard to derive clinical conclusions on modes of presentation, diagnosis and treatment.

What is ECCO CONFER Cases?

ECCO Cases is an initiative to continuously identify, assemble and report together rare IBD cases of clinical relevance. By joining forces of the many members and supporters of ECCO, a joint report of all similar such cases can result in a large case series that will advance our knowledge about these uncommon patients.

How it operates

A call will be made once a year to all ECCO Members to propose CONFER case projects. Cases should correspond to 4 main themes of interest:

  • Rare infections
  • Uncommon drug beneficial effects or side-effects
  • Rare IBD manifestations
  • Infrequent disease associations (neoplastic, infectious etc.)

Two to four cases will be selected by the CONFER steering committee.

The proposing investigator will act as PI and develop his/her case into a CONFER case project with the steering committee.

A call will then be made to all ECCO Members and affiliates who have encountered a similar case to contribute their case to the CONFER case series.

All received cases joined into a case series by PI and prepared for publication.

3 manuscripts from round 1 have already been published/accepted for publication in JCC and 1 manuscript from phase 2 has been completed! Further information will be available in due time...

Steering committee

ECCO CONFER will be managed by a four-member steering committee. The current steering committee is composed of:

Eugeni Domenech (Spain)
Jean-François Rahier (Belgium)
Uri Kopylov (Israel)
Gionata Fiorino (Italy)

The steering committee’s term will be 2 years, after which a new 4 member team will be elected by SciCom.

Publication and authorship

All contributing investigators will be acknowledged as collaborating authors, and the 10 who contributed most patients will be acknowledged as co-authors. When equal, authorship status will be determined by temporal precedence in case contribution. The PI and the steering committee member who developed each case project and its publication will be the first and last author, respectively.

As per ECCO Governing Board decision, submission to JCC would take precedence, unless a very high impact journal is deemed appropriate for publication.

Ethics

The ECCO CONFER project has been centrally approved by the institutional ethics committee of Sheba Medical Center. All cases included will be anonymous to protect confidentially and respect patients’ privacy.

For investigators who are in need of IRB approval in their own institution to participate in this retrospective project, the project protocol, CRF and the central site signed IRB approval can be downloaded:   

pdfCONFER protocol 9.53 KB

docCONFER CRF 69 KB

pdfCentral IRB Approval802.01 KB

 

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