ECCO CONFER Cases

 

COllaborative Network For Exceptionally Rare case reports  

 

CONFER Cases Round 10 - Call for Similar Cases

ECCO CONFER is now opening the call for similar rare cases for the tenth Round of ECCO CONFER Cases.

Case 1: 

Perianal Crohn's fistula in the absence of luminal disease - natural history, time to progression to luminal disease and management in contemporary clinical practice

Case 2:

Exposure to JAK-inhibitors during pregnancy and risk of adverse pregnancy outcome

Case 3:

Safety and efficacy of JAK inhibitors in patients with primary sclerosing cholangitis associated with inflammatory bowel disease.

For more information on the format and content criteria, as well as the selection process, please find the full call below.

ECCO CONFER Call for Similar Cases

Deadline for similar cases: March 15, 2024.

Please  respond to this call by sending your case to This email address is being protected from spambots. You need JavaScript enabled to view it..

Should you have any further questions, do not hesistate to call or contact the ECCO Office via email.

Please find below further information on the cases.

Round 10 - Cases


About

Unique and extraordinary clinical cases are generally reported in the form of a single case report or a small series, making it hard to derive clinical conclusions on modes of presentation, diagnosis, and treatment.

5 main themes of interest:

  • Unusual clinical situations facing diagnostic or therapeutic gaps of knowledge
  • Rare infections
  • Uncommon drug beneficial effects or side-effects
  • Rare IBD manifestations
  • Infrequent disease associations (neoplastic, infectious etc.)

What is ECCO CONFER Cases?

The ECCO CONFER Cases are based on an initiative introduced by the European Crohn’s and Colitis Organisation (ECCO) to support individual investigators in developing rare case series by collecting enough similar cases among the IBD Community. By joining forces of the many members and supporters of ECCO, a joint report of all similar such cases can result in a large case series that will advance knowledge on these uncommon patients.

How it operates

A call will be made once a year to all ECCO Members to propose CONFER case projects. Two to four cases will be selected by the CONFER Steering Committee.

The proposing investigator will act as PI and develop his/her case into a CONFER case project with the support of a member of the CONFER Steering Committee.

A call will then be made to all ECCO Members and affiliates who have encountered a similar case to contribute their case to the CONFER case series. 

All received cases will be joined into a case series by a PI and prepared for publication.

ECCO’s support:

ECCO’s support includes dissemination of a call for similar cases, as well as assessment of the feasibility of the cases by the ECCO CONFER Steering Committee. It does not include any financial support nor any input in the collection of the data, the analysis or the publication of the data collected. 

Steering committee

ECCO CONFER is managed by a four-member steering committee. The current steering committee is composed of:

David Drobne (Slovenia)
Triana Lobaton (Belgium) 
Mette Julsgaard (Denmark)
Daniela Pugliese (Italy)

      


Previous Rounds of CONFER Cases

CONFER Cases Round 9
Case 1: Treatment of chronic pouchitis with JAKs inhibitors and S1P receptor modulators

PI: Giulia Testa and Davide Ribaldone

Case Manager: Triana Lobaton

Manuscript published on JCC. DOI: 1093/ecco-jcc/jjad194

Case 3: Biologicals and/or small molecules in patients with microscopic colitis

PI: Bram Verstockt

Case Manager: Mette Julsgaard

Submitted as an abstract to the ECCO Congress 2024 and published on JCC with the title “Promising efficacy of biologicals and small molecules for microscopic colitis: results from a large real-life multicenter cohort (DOP79). DOI:1093/ecco-jcc/jjad212.0119

CONFER Cases Round 8
Case 1: IBD and hidradenitis suppurativa

PI: Bram Verstockt

Case Manager: Idan Goren

Hard copy poster at ECCO’23 and published on JCC, with the title “P674 Ustekinumab is the preferred biological agent in IBD patients with hidradenitis suppurativa failing anti-TNF therapy: results from a real-life multicenter cohort”. DOI: https://doi.org/10.1093/ecco-jcc/jjac190.0804

Case 2: Safety and efficacy of ustekinumab and vedolizumab after liver transplant for PSC-IBD patients

PI: Triana Lobaton

Case Manager: David Drobne

Published on JCC with the title: "P621 Safety and effectiveness of vedolizumab and ustekinumab in inflammatory bowel disease patients after liver transplantation for primary sclerosing cholangitis: results from an ECCO-confer case series", DOI: https://doi.org/10.1093/ecco-jcc/jjad212.0751

Case 3: Solid organ transplant (but liver) in patients with inflammatory bowel disease

PI: Davide Ribaldone

Case Manager: Maria Chaparro

Hard copy poster at ECCO’23 and published on JCC with the title: “P252 Solid organ transplant (with the exception of liver) in patients with inflammatory bowel disease: An ECCO CONFER Multicentre Case Series. DOI: https://doi.org/10.1093/ecco-jcc/jjac190.0382

CONFER Cases Round 7
Case 1: Surgery due to inflammatory bowel disease during pregnancy: mothers and offspring outcomes

PI and Case Manager: Maria Chaparro

Hard copy poster at ECCO’22 and published on JCC with the title: "Surgery due to Inflammatory Bowel Disease During Pregnancy: Mothers and Offspring Outcomes From an ECCO Confer Multicentre Case Series [Scar Study]". DOI: https://doi.org/10.1093/ecco-jcc/jjac050

Case 2:  A patient with ulcerative colitis and immune thrombocytopenic purpura

PI: Hussein Mahajna

Case Manager: Uri Kopylov

Hard copy poster at ECCO’22 and published on JCC with the title: "Hereditary Colorectal Cancer Syndromes and Inflammatory Bowel Diseases: an ECCO CONFER Multicentre Case Series". DOI: https://doi.org/10.1093/ecco-jcc/jjac094

Case 3: Hereditary Colorectal Cancer Syndromes and Inflammatory Bowel Diseases

PI: Brigida Barberio

Case Manager: Pierre Ellul

Hard copy poster at ECCO’22 and published on JCC with the title: "Hereditary Colorectal Cancer Syndromes and Inflammatory Bowel Diseases: an ECCO CONFER Multicentre Case Series". DOI: https://doi.org/10.1093/ecco-jcc/jjac094

Case 4: IBD and type 2 autoimmune pancreatitis - the diagnostic dilemmas. How far is from theory to clinical practice?

PI: Piotr Eder

Case Manager: Idan Goren

Hard copy poster at ECCO’22 and published on JCC with the title: "Autoimmune pancreatitis in patients with inflammatory bowel disease - a real-world multicentre collaborative ECCO CONFER study". DOI: https://doi.org/10.1093/ecco-jcc/jjad097

CONFER Cases Round 6
Case 2: Neuroendocrine neoplasms in patients with IBD

PI: Giulia Zerboni and Stefano Festa
Case Manager: Idan Goren
Hard Copy Poster at ECCO’21 and published on JCC, with the title: "Gastroenteropancreatic Neuroendocrine Neoplasms in Patients with Inflammatory Bowel Disease: An ECCO CONFER Multicentre Case Series". DOI: https://doi.org/10.1093/ecco-jcc/jjab217

Case 3: Primary Hypogammaglobulinaemia with IBD-like features

PI: Ahmad Albshesh

Case Manager: Uri Kopylov
DOP at ECCO’21 and published on JCC, with the title:"Primary Hypogammaglobulinaemia with Inflammatory Bowel Disease-Like Features"
DOI: https://doi.org/10.1093/ecco-jcc/jjab124