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P152 Should professionals provide their patients with digital health training resources?

A. Echarri Piudo1, G. Molina Arriero1, M. Sierra Ausin2, M. Calvo Moya3, J.L. Pérez Calle4, R. Fraga Iriso1, M.C. Morete Pérez1, B. Botella Mateu5, V. Ollero Pena1, M. Enriquez Rodriguez1, P. Nos Mateu6, B. Castro Senosiain7, D. Martín Rodriguez5, N. Mancenido Marcos8, G-EducaEII of GETECCU

1Complejo Hospitalario Universitario de Ferrol, Gastroenterology, Ferrol, Spain, 2Complejo Asistencial Universitario de León, Gastroenterology, León, Spain, 3Hospital Universitario Puerta de Hierro, Gastroenterology, Madrid, Spain, 4Hospital Universitario Fundación Alcorcón, Gastroenterology, Madrid, Spain, 5Hospital Universitario Infanta Cristina, Gastroenterology, Madrid, Spain, 6Hospital Universitario y Politécnico de La Fe, Gastroenterology, Valencia, Spain, 7Hospital Universitario Marqués de Valdecilla, Gastroenterology, Santander, Spain, 8Hospital Universitario Infanta Sofía, Gastroenterology, Madrid, Spain

Background

One of the aims of the Spanish Working Group on inflammatory bowel disease IBD (GETECCU), is to improve the quality of life of their patients. Quality standards for IBD Units include educational and care support of IBD patients. A trained patient progress better and consumes fewer resources. Although the internet is the main source of information, it is not always accurate. G-EducaEII (GETECCU’s working group) aims to create resources supported by professionals, such as educainflamatoria.com, witch is currently recommended by 60 different Spanish IBD Units as a resourse for knowledge and self-control of the disease for the patients.

The objective of this study was to analise the sources and searches for information in patients with IBD, assessing the feeling of safety when using a reference website, wich is endorsed by IBD professionals. To value the quality, usefulness and understandability of the website, as well as situations where professionals advise to use it.

Methods

Observational study to assess the perspectives of patients and professionals when using a reference website endorsed by professionals and GETECCU. Patients evaluated the website, through anonymous questionnaires (10 questions each) (web link).

The professionals of G-EducaEII units and the patients they had seen over the last 3 months were invited to take part in the study.

Results

100 professionals and 380 patients participated in the study. The website was the principal source of information used by patients (92%). Its information, videos and ilustrations were clasificated as easy to understand (78%) and very useful for training (90%). Symptoms, diets and treatments for the disease, were the main searches carried out on the website.

Difference in age, sex, illness, years from diagnostic and treatment were analysed. All the professionals considered important to support their patients from the Units and most of them (98%) thought it was very suitable to have a proven and quality website, mainly for newly diagnosed and post-hospitalised patients. All the professional recommended the use of the website where it wasn’t available.

Conclusion

Professionals and patients support the availability of an endorsed website, mainly in newly diagnosed and post-hospitalised situations. Patients value and trust a website endorsed by their professionals and use it extensively in their training. The most frequently requested information is related to symptoms, diets and treatments. Patients suggest the organisation of topics for specific conditions. IBD professionals should be involved in educational support initiatives for the patients. The development of a national reference website is a guarantee of reliable training for the patient with IBD.