ECCO Country Member Profiles
12June2019

ECCO Country Member Profiles: Norway

Marte Lie Høivik and Kristin Kaasen Jørgensen, ECCO National Representatives, Norway

Norway

  Norway

Name of group: The Norwegian IBD Group

Number of active members: The Norwegian IBD Group is organised within the Norwegian Gastroenterology Association (Norsk GastroenterologiskForening NGF). The Norwegian Gastroenterology Association has 370 active members. The IBD Group consists of 8 members elected at the Norwegian Gastroenterology Association general assembly (four members elected every second year). Approximately 100 members are active within IBD care.

Additionally,the Norwegian Nurses Organization includes a group for Gastroenterology Nurses (NSF/FSG) with 439 active members, of whom approximately 100 IBD Nurses. There is no formal IBD Nurse network but NSF/FSG arranges a yearly national IBD symposium for nurses interested in IBD.

Number of meetings per year: The IBD Group arranges a national IBD symposium annually. The Norwegian Gastroenterology Association has one national conference and one to two regional meetings in the five different health regions in Norway per year. The NSF/FSG arranges a yearly national IBD symposium for nurses interested in IBD.

President and Secretary:President the Norwegian Gastroenterology Association is Mette Vesterhus, associate professor at Haraldsplass Hospital in Bergen. Petr Ricanek MD, PhD at Akershus university hospital, is head of the IBD Group

National Representatives:Marte Lie Høivik MD PhD at Oslo University Hospital and Kristin Kaasen Jørgensen, MD PhD at Akershus university hospital. Elisabeth Finnes, IBD nurse specialist at Oslo University Hospital is the Norwegian representative in N-ECCO.

Joined ECCO in: 2005

Incidence of IBD in the country: There are no updated incidence numbers available in Norway. According to data from the IBSEN study the UC incidence was 12,8/100.000 persons/year and CD incidence 6/100.000 persons per year in the early nineties. We are awaiting updated incidence data from the ongoing IBSEN III study within 2020.

Posted in ECCO News, Volume 14, Issue 2, ECCO Country Member Profiles

12June2019

ECCO Country Member Profiles: France

Stéphanie Viennot and Jérôme Filippi, ECCO National Representatives, France

France

  France

Name of group: GETAID
Number of active members: 54 GETAID centres (with 1-2 members per centre)
Number of meetings per year:
President and Secretary: Laurent Peyrin-Biroulet (president), Arnaud Bourreille (secretary)
National Representatives: Stéphanie Viennot, Jérôme Filippi
Joined ECCO in: 2007
Incidence of IBD in the country: Crohn´s disease:7.6/100,000    Ulcerative colitis: 4.4/100,000

Posted in ECCO News, Volume 14, Issue 2, ECCO Country Member Profiles

30April2019

ECCO Country Member Profiles: Hungary

Karoly Palatkak and Tamas Molnar, ECCO National Representatives, Hungary

Hungary

  Hungary

Name of group: Hungarian Colon Section
Number of active members: 200
Number of meetings per year:
President and Secretary: Karoly Palatka (president), Klaudia Farkas (secretary)
National Representatives: Tamas Molnar, Karoly Palatka
Joined ECCO in: 2004
Incidence of IBD in the country (if available): 10/100,000

Posted in ECCO News, Volume 14, Issue 1, ECCO Country Member Profiles

11December2018

ECCO Country Member Profiles: Slovenia

David Drobne and Gregor Novak, ECCO National Representatives, Slovenia

slovenia

  Slovenia

Name of group: There is no separate group for IBD. The disease is covered under the national organisation named the Slovenian Association for Gastroenterology and Hepatology.
Number of active members: 75
Number of meetings per year:
President: Stojan Potrč
National Representatives: David Drobne and Gregor Novak
Joined ECCO in: 2008
Incidence of IBD in the country (if available): UC 6.8/100,000, CD 5.7/100,000, total incidence including UBDU 13.7/100,000 

Posted in ECCO News, Volume 13, Issue 4, ECCO Country Member Profiles

11December2018

ECCO Country Member Profiles: Malta

Pierre Ellul, ECCO National Representative

Malta   Malta

Name of group: GI group within the Medical Association of Malta
Number of active members: 15
Number of meetings per year: Not applicable 
President: Stephen Fava 
National Representative: Pierre Ellul
Joined ECCO in:  2016

Posted in ECCO News, Volume 13, Issue 4, ECCO Country Member Profiles

04October2018

Interview with N-ECCO National Representative

17 Cyprus Anastasia N. Nicolaou
Anastasia N. Nicolaou
© Anastasia N. Nicolaou

Cyprus   Cyprus

N-ECCO National Representative: Anastasia N. Nicolaou
Job Title:
GI - IBD Nurse


What influenced your decision to apply for the role of N-ECCO National Representative for your country?
I work in a centre which sees a large number of IBD patients and therefore I felt the need to have a more active role. I have also applied for a PhD in a local university which has a research programme on IBD. 

Posted in ECCO News, Volume 13, Issue 3, ECCO Country Member Profiles, N-ECCO

04October2018

ECCO Country Member Profiles: Sweden

Ann-Sofie Backman, Michael Eberhardson, ECCO National Representatives, Sweden

Sweden   Sweden

Name of group: Swedish Organisation for the Study of IBD
Number of active members: 45
Number of meetings per year: Two main meetings plus numerous project meetings
President and Secretary: 
        Pär Myrelid, President
        Franscesca Bresso, Secretary
National Representatives: 
        Ann-Sofie Backman
        Michael Eberhardson

Joined ECCO in:  2004
Incidence of IBD in the country (if available): 
0.64% prevalence

Posted in ECCO News, Volume 13, Issue 3, ECCO Country Member Profiles

04October2018

ECCO Country Member Profiles: Serbia

Srdjan Djuranovic, Mirjana Cvetkovic, ECCO National Representatives, Serbia

Serbia   Serbia

Name of group: Serbian IBD Association - SIBDA
Number of active members: 230
Number of meetings per year: 
        Steering Committee meetings: 6 per year, 1 General Assembly per year
        Educational meetings: 2 meetings/workshops annually
        Patient relations meetings: 1 per year and on demand
President and Secretary: 
        Aleksandra Sokic Milutinovic, President
        Zoran Milenkovic, Secretary

National Representatives: Srdjan Djuranovic and Mirjana Cvetkovic
Joined ECCO in:  As an association from 2012; we have had National Representatives since the beginning of ECCO.
Incidence of IBD in the country (if available): 
Not available in this moment.

Posted in ECCO News, Volume 13, Issue 3, ECCO Country Member Profiles

04October2018

ECCO Country Member Profiles: Austria

Christoph Högenauer, Alexander Moschen, ECCO National Representatives, Austria

Austria   Austria

Name of group: Working Party on Inflammatory Bowel Diseases (Working Party IBD, Arbeitsgruppe CED) of the Austrian Society of Gastroenterology and Hepatology (ÖGGH)
Number of active members: 
        ECCO: 83
        ÖGGH: 1271
Number of meetings per year: Three annual regular meetings; several regional meetings.
President and Secretary: 
        Leader of the Working Party IBD: Christoph Högenauer
        President of ÖGGH: Herbert Tilg
        Secretary of ÖGGH: Harald Hofer

National Representatives: 
        First Austrian National Representative: Christoph Högenauer
        Second Austrian National Representative: Alexander Moschen

Joined ECCO in:  2001
Incidence of IBD in the country (if available): 
Annual incidence of IBD: Crohn’s Disease: 6.7/100,000; Ulcerative Colitis: 4.8/100,000 (Petritsch W et al. J Crohns Colitis 2013;7:58–69)

Posted in ECCO News, Volume 13, Issue 3, ECCO Country Member Profiles

08June2018

ECCO Country Member Profiles: Portugal

Ana Isabel Vieira and Isadora Rosa, ECCO National Representatives, Portugal

Portugal   Portugal

Name of group: Grupo de Estudos de Doença Inflamatória Intestinal (Study Group of Inflammatory Bowel Diseases) - GEDII
Number of active members:300
Number of meetings per year: 2
President: Luís Correia
Secretary: Paula Ministro
National Representatives: Ana Isabel Vieira and Isadora Rosa
Joined ECCO in:  2004
Incidence of IBD in the country (if available): 
14/100,000 habitants

Posted in ECCO News, Volume 13, Issue 2, ECCO Country Member Profiles